Kindness That Advocates

What if the strongest form of advocacy didn’t sound loud, but felt deeply human? We sit down with Whitney Price, founder and executive director of Unpuzzled Parents Connect, to unpack how empathy, clarity, and community can move mountains for families raising neurodiverse kids. From West Virginia’s resource deserts to two-hour doctor trips and long insurance battles, Whitney shows how facts over fury and kindness over shame can open doors that frustration often slams shut.

We trace the family journey from the shock of an early autism diagnosis to the quiet heroics of daily advocacy: documenting medical necessity, lining up provider letters, and appealing denials with patience and precision. Whitney shares practical tactics for IEP meetings, healthcare pushback, and those tough moments when a child’s sensory needs collide with rigid systems. Along the way, she refuses the false choice between being “nice” and being “effective,” proving that compassion is a strategy, not a soft spot.

Connection anchors everything. Whitney explains how a simple support group grew into a nonprofit that trains parents, hosts expert voices, and builds bridges through story and practical tools. We spotlight a powerful school initiative—classroom kits that reached 4,000 students—designed to turn Autism Awareness into Acceptance with honest Q&A, people-first language, and invitations to play. And we tackle two stubborn myths head-on: that autistic kids lack empathy, and that gentle parenting is permissive. Whitney offers nuanced, lived insight on both, plus a vital reminder that self-compassion keeps caregivers steady for the long road.

If you care about advocacy, inclusion, and family resilience, you’ll find hope and actionable steps here—ways to stay firm without hardening, and to build systems that actually work for kids. If this conversation resonates, follow the show, share it with someone who needs it, and leave a review so more families can find this support.

This podcast is a proud member of the Mayday Media Network — your go-to hub for podcast creators. Whether you’re just starting a podcast and need professional production support, or you already host a show and want to join a collaborative, supportive podcast network, visit maydaymedianetwork.com

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“Intro music: ‘Human First’ by Mike Baker – YouTube Music: https://youtu.be/wRXqkYVarGA | Podcast: Still Here, Still Trying | Website: www.mikebakerhq.com”

Transcript

Welcome And Mission

SPEAKER_00 0:22

Welcome to the final podcast. Final lights. Take care of your friends to family. Take care of spread the light a little further. Because when it comes to kindness, the rifle. Hey, hello, and welcome everybody. Thank you so much for joining us. You are listening to the Kindness Matters podcast, and I am your host, Mike Rathbun. And when I say thank you for joining us, I sincerely, sincerely mean that, you know, all of our lives are very, very busy, and our days are very, very full. And the fact that you took ish minutes out of your day to uh to listen to this podcast, to join in this community of of kindness, uh, really, really, really means a lot to me, and I thank you so much. Um, just want to plug one more time. Um, we have a merch store now, and you will find the link for that in the show notes. All the proceeds from anything that is purchased in that merch store: hats, coffee cups, book bags, whatever. Um, a hundred percent of the proceeds go to nonprofits, either nationally or locally here in Minnesota. So make sure to check out the show notes after you're done. And in the meantime, while you're thinking about what you might want to buy, um we have uh a fantastic show for you today. Today on the uh on the podcast, we're honored to welcome Whitney Price, the founder and executive director of Unpuzzled Parents Connect, a nonprofit built on a belief that no parent or caregiver should ever feel alone on the journey of raising a child with special needs. Whitney's work is rooted deeply in real-world experience, from navigating the emotional and systemic challenges of special needs parenting to building a community that empowers families through connection, education, and support. And in a world that often equates strength with stoicism, Whitney brings a powerful and compassionate voice to the idea that kindness, empathy, and compassion are not weaknesses, they're courageous choices that strengthen our communities, heal our hearts, and transform lives. Whether she's hosting heartfelt conversations on her Get Unpuzzled podcast, or creating judgment-free spaces where caregivers feel truly seen and supported, Whitney models what it means to lead with heart, proving that empathy, far from being soft, is a catalyst for resilience and real change. Welcome to the show. That was a very long intro. Welcome to the show, Whitney.

SPEAKER_02 4:21

Thank you. That was wonderful. I appreciate it.

SPEAKER_00 4:24

Thank you. Well, I mean, I and I'm I meant every single word of it. And I can't believe I didn't mess up the word stoicism. Oh I yeah, when I wrote it, I thought, do you really want to use that word? Because that's gonna trip you up. And it didn't.

SPEAKER_01 4:42

So there. Uh you uh you're such a creator.

SPEAKER_00 4:51

Um talk to me about unpuzzled parent Parents Connect. Um, this was born out of your personal experience, right?

Diagnosis Shock And Resource Gaps

SPEAKER_02 5:01

Yes. Unpuzzled Parents was born from two parents who were absolutely struggling emotionally, financially, were under so much self-isolation. Um this started when my husband and I received our son's diagnosis. Connor is seven and a half, and he was diagnosed with autism at the age of two. And that rocked our world. We are in West Virginia, where we are the lowest ranked in the nation for both resources for the disability community and also funding. And in our neighborhood or our neck of the woods, we couldn't just search anywhere to find these therapies that were needed. So that first year of Connor's diagnosis were it was absolutely um, it was quite a journey. So with that uh with that struggle, that's more or less how Unpuzzled kind of came about. We started as a support group and just organically built from there.

SPEAKER_00 6:06

But that's and wow, what a thing to build, right? I mean, what's more difficult, advocating for your child with autism or trying to start a nonprofit?

SPEAKER_02 6:22

You know, advocating is I I'm still gonna pick that. Advocating is still difficult because it all goes back to the lack of resources in the state of West Virginia and just general knowledge. You don't receive a handbook at all when you're a new parent, let alone when your child is diagnosed with uh a high level of support needs that Connor has. He wasn't just diagnosed with autism, but at the first four years of his life, he was completely nonverbal. So there was a level of communication that was a complete barrier for us. And just not knowing who to turn to, you know, doctors will tell you to go do different types of therapy, occupational speech, ABA therapy, physical therapy, behavioral supports. But if you haven't been in that world before, you don't know that there's insurance rejections to overcome. You don't know that the life and the story that you'd already put in your mind is gonna completely change. You know, the perfect picture that you had planned is now wrote in a different language in a completely different country. And that's what it felt like when we received that diagnosis. So I would say advocating, although I love the nonprofit world and it's it's a heck of a um struggle to build from the ground up, it's still so rewarding. Um, but advocating is still the most, I think, needed for our community in this area.

SPEAKER_00 7:58

Well, that's probably where the where the the concept for your nonprofit started, right? We need people A to be aware of you know what what's needed, and then B I lost it.

SPEAKER_01 8:16

It was right there. So Okay, so talk to me about how this is a show about kindness, right?

SPEAKER_00 8:32

So we're how can kindness actually make somebody a stronger advocate for their child or their community instead of a pushover?

Advocacy Versus Starting A Nonprofit

SPEAKER_02 8:45

I think kindness is something that is really rooted in the person. I think it is really built on your own character. So when we think about advocacy, a lot of the times we think of this hard-shilled person that is going, they're just going in and more or less leading a rally. They're yelling, they're screaming, they've got signs that they're holding up. You know, we want justice. And that a lot of that is advocacy. A lot of advocacy does have emotion behind it, especially if it's your child that you're advocating for. But we always leave with facts over our feelings and knowing our child's rights, knowing our rights, and that helps a lot. But I think kindness has to be rooted in the person. So you'll you'll find some advocates that um maybe give advocacy a bad name, but I don't think that um necessarily means that they're a bad person. It might also mean that they have had such a long journey of being turned down, being told no, not knowing their rights, not knowing their child's rights. Um, but I do think it's just overall rooted in the person.

SPEAKER_00 9:57

Yeah. Uh and can you give us a sense of for some of us that don't have children in that situation? Um what does it look like? I mean, you had to probably research to find out what your rights were and your child's rights. And all of that, what what does that look like on a daily basis? Is it just days spent on the internet researching, or how does that work?

Rights, Insurance, And Daily Battles

SPEAKER_02 10:32

A lot of it is lived experience. Advocacy is in so many areas of a person's personal life, whether they have a disability or not. But when they are fighting for a child with a disability, you're gonna have advocacy in the form of fighting with insurance, knowing that there's different levels of um rejections that you may go through, but also knowing how to overcome them. That's something that we work really hard on training parents on. And then depending on where your child is, there could be advocacy in the medical field. Um, an example that I'll give you that happened to us, we were traveling for one of Connor's appointments that was two hours away. And we were gonna get there right on time. Well, we call it ahead of time, letting them know, hey, we were having some trouble transitioning from the parking lot to the inside. Um, he is not a fan of doctor offices like most kids, but sensory overload really impacts him on a deeper level than most typical seven-year-olds. So what would take some people just unbuckling getting out of the car might take us 20 to 30 minutes. So we made the phone call, let them know, hey, we might be just a couple of minutes late. We're here, we're just struggling with the transition. And they said, well, we'll have to, we'll let you know if they can still see you. We'll have to let the doctor know. We drove two hours to get there. And we also knew that with his disability, you couldn't just deny a child based upon their struggle. So when we finally got inside, they tried to deny us the appointment. And then they tried to say, well, we don't really work with kids. They're not really a pediatric doctor, but we were referred there because they were a pediatric doctor. So having advocacy in that moment, knowing that you can't um, you know, just turn us away based upon him having a transition uh from the parking lot to the inside. But then also, you know, you have to have a strong enough heart and mind to stand up and say, okay, I'm I'm not just gonna leave. I will patiently wait. But we were on time, you know, we were struggling um in the parking lot. So it's not like we were 20 minutes late and just no sh no showed, no called. Um so advocacy is in so many different areas. If you're a child that's getting ready to go to school and to an IEP meeting, there's a level of advocacy that you're gonna have to go through. You have to know your child's rights, um, guardianship when they're transitioning from um, you know, not being an adult into adulthood, you're gonna have to know your rights. So there's so many different areas where a child would need to either have self-advocacy or the parent would have to know to advocate for them. Um, but it's lifelong. It is something that um will stay with us for his whole life.

SPEAKER_01 13:42

Wow.

SPEAKER_00 13:44

Um, I don't know the makeup of where you are, but I would imagine that for for people with disabled children it's not like you know, you're all next door to each other, right? I mean you're you're obviously you're spread apart. Um an unpuzzled parents connect was founded, so no caregiver feels alone. How have you seen compassion in that community turn isolation into connection action?

SPEAKER_01 14:26

Because I think sometimes go ahead.

SPEAKER_02 14:28

Oh, I was gonna say, um, I think the biggest piece that we're able to support parents on is that emotional connection level.

unknown 14:37

Yeah.

SPEAKER_02 14:38

Um when you you're a parent that's newly diagnosed, you go through so many different emotions that first year. And and even after that first year, you're always constantly going through emotions. There's the grieving process, there's a bit of denial, um, there's self-isolation. So when you're able to connect with another parent on that type of level, I think that's just invaluable. And I think compassion will come out a lot in that. Um, and that's something that is deeply rooted within our organization. That was the very first program that we had was our support group. And that is essentially how we started. We started with just coffee meetups. So parents, whether it was moms, dads, siblings, even, could come and just share. And they could laugh together. We could um just have a relaxing environment, but that catered a lot to the emotional support and connections that parents are really craving when they're alone and completely isolated.

SPEAKER_00 15:44

Yeah, and I I I can't even imagine how good that must feel to be able to connect with a human being who who knows almost exactly what you're going through, and to be able to talk and share your your triumphs and your failures, because there will be both, right?

SPEAKER_02 16:04

Sure. Uh it is amazing. Uh there's really nothing like meeting another parent, even though autism is such a broad spectrum and there's so many different variances of support. It is so comforting to know that we're walking a similar journey and we're probably having to overcome a lot of the same obstacles, whether it's medical providers, um advocating in different areas or just the lack of knowledge and how much our children are changing. So that emotional connection is is really everything.

SPEAKER_00 16:42

Yeah, for sure. I mean, because uh And it's the same with with other type of supporters, but I I just can't even imagine um raising a child and not having that connection to somebody else who knows what you're going through. I the the isolation must be just overwhelming.

From Isolation To Connection

SPEAKER_02 17:07

It was. Um you know, we more or less that first year, uh not only did we not have a good understanding of what autism was, you know, we had a general idea, but we had your stereotypical idea. We had the rain man. We knew of the same one I've got uh mo most people. Uh we didn't we weren't educated on it. We knew of you know love on the spectrum and the America's got talent, you know, children that had these high IQs and hidden talents in some way. We had no idea that there were different support levels needed. So when Connor was diagnosed, my husband and I would, we didn't want to tell anyone. We just thought, okay, what if they're wrong? What if some people have told us he's gonna grow out of it by the age of, you know, by the time he's seven, eight, a teen, he won't have autism anymore. And, you know, of course, you go to Dr. Google, you start your own research and and finding your own unsolicited advice and all of these, you know, crazy antics that you'll read online. Hey, take take this vitamin, they need to play with this toy, they need early intervention, but make sure it's this type of therapy. And then also work your full-time job, be a mom, and try to keep up with his full-time therapy. So that first year was um absolutely depressing. It was us not saying anything, happened to tell our work and our jobs that we needed flexible scheduling, which wasn't a great conversation to have. We're both in the uh auto background. So he was a general manager at another dealership. I was a finance manager at another dealership, and um, it was just very hard. And because we didn't have any support from family, we weren't living around family, and the family that um did know about Connor's diagnosis kept saying, Don't label the baby. Don't ever label that baby. So we didn't, we didn't talk about it, we didn't socialize with others. We just acted like if we can figure this out soon enough, then we won't have to tell anyone. He won't be labeled. And a couple years from now, it'll be like it never happened. That was so far from the truth. Yeah. You know, and the same thing when we talked about Medicaid. Connor was able to get on West Virginia waiver. That is a very, very level, or I'm sorry, a very high level of support needs that he had to meet to be able to qualify. And he did. He's one of 6,000 in the state of West Virginia that they felt was uh qualified to meet the criteria, but that saved us. That Medicaid was able to help pay for a lot of the therapies that we were taking him to. So that saved us from having to sell our home, having to go bankrupt. I mean, there's so many different things. And we were told, don't talk about it. Don't, you know, just keep it to yourself. Such a bad taboo around all these things. Same with therapy and counseling and wellness and mental health. No one really feels the need to talk about it. But if we don't, then we can't break down those stigmas. So that is part of our mission as well.

SPEAKER_01 20:34

Yeah. And you had touched a little bit in on advocating for services. Um and services and and insurance are two different things, right?

Stigma, Labels, And Medicaid Support

SPEAKER_00 20:53

I mean you need insurance to get the services, but um I'm pretty sure that a lot of parents feel that they have to be harsh or combative to get services. How can parents be firm and persistent while staying grounded in empathy for themselves and for the providers?

SPEAKER_02 21:20

It's always difficult when you're a parent that has been told your child needs this specific type of therapy. So we make the phone call to, let's say, the provider. Maybe they don't have any appointments available. Or maybe the wait list they tell you is six months long. And then you call the other provider and they tell you the same thing. And then the next provider's 30 minutes away and you know that you can't make that work. So let's say finally you're given that appointment and the insurance says, we're not going to cover it. There's been so many times that a parent at that point has been told no, or we're not going to do it, or it can't happen, that it is so difficult for them to maintain that type of empathy. But what we let them know is there's other people on the other side of the phone. They're not the ones rejected you. And we can overcome it. We can make sure that the child has medical necessity papers. We can make sure that we know the explanation of benefits. We can get letters from the doctors and physicians to show why the child needs the therapy. And we can't overcome it. We just have to know the proper steps to take. So I think you're right. Everything does go back to the empathy piece. And sometimes it is such a struggle when you've been told, no, this can't happen. It's not going to happen. And you feel like you're failing as a parent because your baby or your child is so far behind on the mile markers that they're supposed to be hitting. You know, they tell you from the age of um since a child is an infant, they tell you there's milestones that have to be met. When your child's not meeting them, who's to blame? You internalize that and you go, oh my God, he's only two and I'm screwing all this up. You know, I gotta, I gotta hurry up and get him to talk. We have to, we have to do this. And it's difficult. But I think if people can remember that most providers want you to win, most providers have a great heart. Most teachers, educators, and advocates uh are in it because they're passionate about the children, then I think that really helps.

SPEAKER_00 23:38

And when we're talking about kindness and compassion and empathy, it's not just for everybody else, it's for you too, right? Because you do, like you said, you you probably beat yourself up a lot as a parent, as any parent, but especially a parent in your situation, you're you're thinking, well, my son doesn't he isn't speaking or whatever the milestone is that he is supposed to be reaching, and you you blame yourself, just like you were saying. But you gotta show yourself some some empathy too, right? And compassion.

SPEAKER_02 24:15

Self-compassion is so important. Absolutely. Like you said, that self-compassion piece, but that is probably the biggest thing that I'd struggled with the first several years of Connor's diagnosis. Because even when we did get him in these therapies, you start to see other children that are progressing that maybe were a little bit um delayed in areas that we weren't and now have excelled in other areas. And it's hard. You can't help, you know, we're human nature is to compare, unfortunately. And even with our kids, we tend to compare. And you have to give yourself a little bit of grace because it's such a hard position. It's such a hard job. Um, that I if you can give yourself some credit and grace, then it's gonna help.

Empathy With Providers And Yourself

SPEAKER_00 25:04

Yeah, for sure. So um April. April, I believe, is autism awareness and acceptance month. Is that correct?

SPEAKER_01 25:15

I guess, yep.

SPEAKER_00 25:16

Because I've seen some of them without the acceptance and then some of them without the awareness, but it's both, right?

SPEAKER_02 25:22

It can be both, yes.

SPEAKER_00 25:24

Oh, it can be, but it doesn't have to be. Um so you you did a you did a thing for autism awareness month, right? Where you reached Yes. You tell a story because you know it better than I do.

SPEAKER_02 25:42

Um Autism, uh, you can say Autism Awareness to Acceptance Month. Excuse me. We were able to gift 4,000 students our classroom kits for inclusion. And these included a book about a little boy named Nick who has autism. And it's basically a way for the teachers to show kindness and compassion in the classroom. And they um are given a manual of how to ask questions, how to prompt the students with questions, and just have an open conversation of what differences look like, whether it's somebody wearing headphones, somebody jumping, somebody being really excited, or maybe even a child that doesn't speak, or maybe a child that plays different on the playground. We wanted to really um make sure that we included children in grade school because those were the most impressionable. And it was amazing that we were able to reach 4,000 between West Virginia and Ohio. So that was really exciting.

SPEAKER_00 26:45

Incredible. That's a huge number of kids.

SPEAKER_02 26:48

Yeah, we're excited. We're we're trying to double that this year. Are you pretty excited? Yes, that's our goal.

SPEAKER_00 26:55

That's fantastic. Um and you've you've traveled, you've done speaking tours. You've traveled to multiple counties, um, spoken at several locations, and did news and radio spots and podcasts, and then you started your own.

SPEAKER_02 27:16

Yep.

SPEAKER_00 27:17

Did you ever feel pressure to be more hard-edged? And how did you stay rooted in compassion? If you were expected to be more hard-edged.

Awareness To Acceptance In Schools

SPEAKER_02 27:36

I don't know if I ever felt pressured to be more hard-edged as an advocate. Um, I think the most pressure is just not knowing enough, knowing that we're gonna be ever changing throughout our son's life and meeting parents where they're at, knowing that we're not gonna have all the answers. We're still growing, we're still so far behind in the state of West Virginia that it's most important to talk about the mission and how we can all work together. But I don't know necessarily if as an advocate, and I don't always use that label for myself, honestly. Um, I try to just say we are servant leaders. We try to help any and every parent that we come across, whether it's with resources, pointing them in the right direction, like with the insurance navigations or just the emotional support. But compassion is something that we've led with since we have started. So that is something that's incredibly important. And we try to preach compassion because we want people to be kind to our kids. And you shouldn't have to teach on kindness, but you would be shocked when I go into schools and talk about the classroom kits. The first thing they say is, can we talk about autism? Yeah, absolutely. Talk about autism, talk about disabilities, talk about differences. We try to use people first language, we try to be respectful to individuals, but most importantly, have the conversation when kids are young. And we tell parents the same thing when you'll be sitting in a store and someone will say, Don't stare. Well, no, be curious, ask why. Ask if it's okay, and then ask to go play. You know, there's children that may jump. My son is a jumper. So if you see us out in a store, if you see us on the playground, Connor will be jumping 24-7. And there are kids that will stare. And we are the first to approach and say hi. And that is our way of kind of opening up the door to say, come play. Like we still want to play. We're just playing a little bit different. So, but kindness and compassion is that is more or less what we lead with because that's what we want the world to be.

SPEAKER_01 30:00

Sure. Sure. I love that. A jumper.

SPEAKER_00 30:04

So he just he jumps just straight up, like a hook shot kind of thing.

SPEAKER_02 30:09

Like um, more or less like he could be. It depends on how excited he is. If he is excited, the more excited, the higher he's gonna jump. Um, but just imagine someone on a pogo stick without the pogo stick. That is him all the time since he was an infant. That's crazy.

SPEAKER_00 30:31

So was it one of those jumpers? Did you get one of those jumpers for the when they were infants, put it in the door frame? They're on like springs little seat. It's like, is that where it started?

SPEAKER_02 30:42

Oh gosh. Um I think for him, as soon as he could stand, he was he was jumping. And that is just something that you know, we've gone through um trampolines, we've gone through bounce houses, you name it. If he can, we've gone through bounce boards, bounce pads, oh my god.

SPEAKER_01 31:02

Everything um couch cushions, beds. Um so when did you start your podcast?

Speaking Tours And Servant Leadership

SPEAKER_02 31:15

I started the podcast a little over a year ago just as a curious hobby and more because we were starting to do more hybrid activities for trainings. And when we started to bring in a lot of therapists, I said, what if we did a podcast so where if they can't attend the therapy session, then they can hear about different techniques and tools to use to stay grounded, focused, and centered. So that was really how it started. And then since then, we've just been able to talk to a lot of people in um the autism world. So we've had people like Dr. Carrie Magro on. Um, we've had uh special education advocates, we've had people from Love on the Spectrum. So we've reached a lot of different um speakers, but we've also had a lot of different trainers and professionals on there as well, just to have as much um knowledge for our listeners as possible. And that's really the tool that we use it for.

SPEAKER_00 32:20

Well, I think it it it gives you a whole new audience, right? Somebody who might be in another state hadn't heard about unpuzzled parents connect. Now they can learn all about autism and just another way to make people feel less alone, right?

SPEAKER_01 32:39

Yeah, that's the goal. Perfect. One last question.

SPEAKER_00 32:47

What myths about kindness, empathy, and strong parenting would you most like to debunk for parents of kids with special needs?

SPEAKER_01 33:07

What myth of of empathy for parents of kids with special needs?

SPEAKER_00 33:17

What would you like? And maybe there aren't any.

SPEAKER_02 33:20

I'm gonna say a couple. For the parents, I think the biggest myth I want to debunk is that your child doesn't show empathy or doesn't have it. One of the biggest misconceptions for children or individuals with autism is that they don't have compassion and empathy, and they absolutely do. They may not be able to communicate that at a young age, but as they progress and get older, uh, my son just started really showing a lot of empathy. Feelings are a very hard concept to teach at any age, especially to the younger ones. But for neurodiverse children, it can be even more complex. They're very, they're very uh black and white. There's no in the middle gray. So for Connor, it's difficult to learn those feelings, but he has learned a lot of empathy. Now, if somebody shows a sign that they're hurt, he'll immediately say, You okay, you okay, and he'll give a hug and a kiss. So that is one of the biggest misconceptions that I would like to debunk. The other thing is um I think that people have a bad reputation when it comes to gentle parenting. I think there's such a misconception around that term that it can look so different for everyone. Gentle parenting doesn't mean that we excuse the behavior. Sometimes it's just in the way that we are um disciplining or more or less showing an understanding, knowing that the child may be having a hard time, not trying to give us a hard time. So that would be the second thing that I would like to debunk for parents.

Debunking Myths On Empathy And Parenting

SPEAKER_00 34:54

I love both of those. And we're gonna end it there. Whitney Price, thank you so much for joining me. Um, I absolutely love what you're doing. Uh, wish you the best of luck on the podcast and the nonprofit unpuzzled parents connect. And the podcast is get unpuzzled, right?

SPEAKER_02 35:17

Yep.

SPEAKER_00 35:18

Fantastic. Wishing you the best of luck.

SPEAKER_02 35:22

Thank you. Thank you so much. Thanks for having me.

unknown 35:25

Human first.

SPEAKER_00 35:32

Thank you so much for joining this episode of the Kindness Matters podcast and spending part of your day with us and our guest Whitney twice. Truly appreciated. If this episode resonates with you, the rest of the episode. Don't forget to subscribe to the first step. Go to another week to the book. Go to those twenty up. We will be back again next week, but that's another week.